Response 685355123

Back to Response listing

Information About You

Are you responding as an individual or an organisation?

Please select one item
(Required)
Ticked Individual
Organisation

What is your organisation?

Organisation
N/A

The Scottish Government would like your permission to publish your consultation response. Please indicate your publishing preference:

Please select one item
(Required)
Publish response with name
Ticked Publish response only (anonymous)
Do not publish response

Fixing the principles in legislation

Which way do you think principles should be embedded in the legislation?

Please select one item
A. As a 'Claimant Charter'?
Ticked B. Placing principles in legislation?
C. Some other way
If other, please specify
N/A

What should be in the charter?

What should be in the charter
N/A

Should the charter be drafted by:

Please select one item
An advisory group?
A wider group of potential user and other groups or organisations?
Both
Ticked Some other way
If other, please specify
N/A

We are considering whether or not to adopt the name, "Claimant Charter". Can you think of another name that would suit this proposal better? If so, what other name would you choose?

We are considering whether or not to adopt the name, "Claimant Charter".
N/A

Do you have any further comments on the 'Claimant Charter'?

other comments - claimant charter
N/A

On whom would you place a duty to abide by the principle that claimants should be treated with dignity and respect?

Please select one item
The Scottish Government
The Scottish Ministers
Ticked The Chief Executive of the Social Security Agency
Someone else
If someone else, please specify
N/A

Do you have any further comments on placing principles in legislation?

further comments on placing principles in legislation
Although I believe The Government & their Ministers also have to abide by these principles.

Do you have any further comments or suggestions in relation to our overall approach, to fix our principles in legislation? For example, do you feel that there is no need to fix principles in legislation?

comments or suggestions in relation to our overall approach, to fix our principles in legislation
I Believe that it is crucial that the principles are fixed in legislation.

Outcomes and the User Experience

Are the outcomes the right high level outcomes to develop and measure social security in Scotland?

Please select one item
Ticked Yes
No
Please explain why.
The outcomes seem to put recipients first & not the system itself. This gives recipients a reliable, secure system rather than the fear demonisation and humiliation felt with the existing system. Disability is not a lifestyle choice and should not be used as a stigma to persecute a person with a disability. The changes have ruined peoples daily life causing many to commit suicide. A Social Security system should allow people to be secure, safe and have a reliable income (not a benefit) to enable equality and real life choices.The main change

Are there any other outcomes that you think we should also include (and if so, why)?

ny other outcomes that you think we should also include
The main outcome for those of us with Lifetime disabilities, that will not improve, is no more assessments, zero. Once a person has been awarded the full list of benefits that should be it, only then are we able to control our lives and look to the future without fear and participate in society again without fear. If possible & when available to ScotParl, the ESA benefit should be abolished. Why are people who will never be in paid employment given a payment called Employment support allowance? This is the biggest insult to all in receipt of it.

How can the Scottish social security system ensure all social security communications are designed with dignity and respect at their core?

Scottish social security system ensure all social security communications are designed with dignity and respect at their core
By including users in every aspect of this process, this will be a challenge as many would not be able to fill in this form or understand the implications. These are my views but are being put in by my legal appointee (my mother). I do have a voice which I use actively in YourVoice advocacy group, NLC access panel and other groups. As a member of the SNP disabled group I find it difficult to take part as I require support to do so, as a result of my disability.

With whom should the Scottish Government consult, in order to ensure that the use of language for social security in Scotland is accessible and appropriate?

With whom should the Scottish Government consult, in order to ensure that the use of language for social security in Scotland is accessible and appropriate?
With various users having multiple difficulties, which must be recognised, who can express their needs. As someone who is as an assessor by the access panel, of which I am a member, to assess premises, facilities there are many difficulties that dissuade people from taking part. It must be made simpler and ,more suited to the applicant and not the authority. I can highlight this as my disability is both obvious and invisible as there are many different aspects to it.

Are there any particular words or phrases that should not be used when delivering social security in Scotland?

Please select one item
Ticked Yes
No
If yes, please state which words or phrases should not be used.
Lifestyle choice/ Benefits/ ESA/ Fit/ Drain/ Scrounger/ Lazy/ Dependent on the state/ You look as if/ Outcomes (as applying to the user, this is very insulting) There are too many to enter

What else could be done to enhance the user experience:

When people first get in touch?
Instead of making it another assessment a person should be told what incomes are available, and what they maybe able to apply for. They should also be offered assistance and support in applying as the forms are far too difficult even for me.
When they are in the process of applying for a benefit?
Support in the process, maybe a named adviser who can get to know the person a little. The person best suited to inform is the claimant or their spokesperson.
When a decision is made (for example, about whether they receive a benefit)?
That they do not make the person feel as if the money is coming out of their pocket. That they treat them with respect and dignity whether they are successful or not, and advise accordingly. Giving out any information of their rights and what else they can apply for or get help and assistance from.
When they are in receipt of a benefit?
Not be judgemental, instead provide information and help as to other things that is available for them to become involved in or to apply for. There is a lack of informative material in all formats for all recipients, especially since the changes in welfare.

How should the Scottish social security system communicate with service users (For example, text messaging or social media)?

Scottish social security system communicate with service users
In whatever form suits service users, all of the above and letters/e-mails/ brail/large print etc

What are your views on how the Scottish Government can ensure that a Scottish social security system is designed with users using a co-production and co-design approach?

co-production and co-design approach
co-production and design is a fantastic plan of approach for the social security system. As a recipient all my life I would willingly fully take part in such a process, many would take part in a small or larger way, a way that would suit the recipient. Individual participation is crucial not just groups sending a representative, this works only sometimes. Every aspect of this new system should be about participation not just consultation, which sometimes means being told whats happening not taking part in decisions.

We are considering whether or not to adopt the name, "User Panels". Can you think of another name that would better suit the groups of existing social security claimants which we will set up? If so, what other name would you choose?

We are considering whether or not to adopt the name, "User Panels".
I believe User Panels is appropriate though there will be some who imagine it not to be. The panel would be representing all peoples with Disability. Co-Production Panel Consultants Panel 'Representatives Panel'

Delivering social security in Scotland

Should the social security agency administer all social security benefits in Scotland?

Please select one item
Ticked Yes
No
Please explain your answer.
Scotland should be in control of all aspects of the Social Security system as a whole.

Should the social security agency in Scotland be responsible for providing benefits in cash only or offer a choice of goods and cash?

Please select one item
Yes
Ticked No
Please explain your answer.
Cash only. By goods I am unclear what this would entail, as I believe income for many is directly linked to independence, security and choice. In the ongoing reforms the threat to our income is terrifying, wondering every week if it will be removed. Continual assessment, when conditions will never improve, removes billions of public money into private companies

How best can we harness digital services for social security in Scotland?

How best can we harness digital services for social security in Scotland?
Maybe personal accounts and easy to use web sites, though some find this difficult.

Should social security in Scotland make some provision for face to face contact?

Please select one item
Ticked Yes
No
Please explain your answer.
For the initial application yes and for those conditions that change or improve There used to be a clear division between Incomes for those with a disability and those with illness as they are two very different situations. When an individual has a lifelong permanent condition which will not improve and will progress through time No, unless requested by said individual. Face to face has become fear for all recipients.

Who should deliver social security assessments for disability related benefits?

Who should deliver social security assessments for disability related benefits?
NHS as was done from the beginning, and very successfully. I have been disabled since birth and was awarded lifetime DLA which I still receive, have never been assessed for PIP. Even specialists have difficulty as everyone is different and has different barriers. The lifetime awards allow many to gain employment, have some independence and inclusion.

Should we, as much as possible, aim to deliver social security through already available public sector services and organisations?

Please select one item
Yes
Ticked No
Please explain your answer.
There must be a Scottish Agency providing this service with respect and dignity shown to the applicants, instead of the abysmal service that we have.

Should any aspect of social security be delivered by others such as the 3rd sector, not for profit organisations, social enterprises or the private sector?

Please select one item
Yes
Ticked No

Equality and low income

How can the Scottish Government improve its partial EqIA as to produce a full EqIA to support the Bill?

How can the Scottish Government improve its partial EqIA as to produce a full EqIA to support the Bill?
Equality in social security is very difficult. I have recently moved into my own home and had changes to my benefits. For the first time I received Severe Disability Premium which meant I could financially live independently, as it took me over basic ESA. Having been assessed by ILF Scotland only last week I will now lose that benefit as I have been told it will be seen as my CONTRIBUTION to my support budget from ILF Scotland? Equality? I may now need to move back and live with my mother as my income will reduce dramatically by approx. £62 per week 1/3rd of my weekly income gone.

Independent advice and scrutiny

Do you think that there is a need for an independent body to be set up to scrutinise Scottish social security arrangements?

Please select one item
Ticked Yes
No
Please explain your answer.
Yes but not as is in place in the UK as obviously they are not fit for purpose. The persecution of people with Illness or Disabilities has been discriminatory and abusive with no accountability by these groups or DWP.

If you agree, does the body need to be established in law or would administrative establishment by the Scottish Government of the day be sufficient?

Please select one item
Ticked Yes
No
Please explain your answer.
Administrative establishment should be sufficient, while great consideration on those appointed would have to be in consult with users of social security system. Lifetime users must be consulted and take part in this process, as their independence and inclusion in society depend on the system.

If yes, what practical arrangements should be made for the independent body (for example, the law could state how appointments to it are made and the length of time an individual may serve as a member of the body)?

what practical arrangements should be made for the independent body
As an Administrative Establishment? I have no idea what would be the best way for appointments to be made

Should there be a statutory body to oversee Scottish social security decision making standards?

Please select one item
Ticked Yes
No
Please explain your answer.
As long as this was set up in Scotland for Scotland to protect the rights of those dependent on the system and not the UK Gov which seems to have failed on all points. The power of those that serve in society as our government can never be used to support their position but instead their people.

If yes, should the be a separate body in its own right?

Please select one item
Ticked Yes
No
Please explain your answer.
No there must be accountability

Do you have any other views about the independent scrutiny of social security arrangement in Scotland (e.g. alternative approaches)?

about the independent scrutiny of social security arrangement in Scotland
I believe there should be a Basic Income for all, with additions for those of us who will always be non wage earners.

Disability Benefits

Please explain your views (both positive and negative) on disability living allowance.

Please explain your views (both positive and negative) on disability living allowance.
I receive DLA and lease an adapted motability vehicle. I receive middle rate care component although I qualify for the high rate I have never applied for fear of losing my mobility component and therefore my vehicle. DLA is non means tested and must remain so as it enables people to seek employment & equality (extra costs for having a disability can be immense) Negative:- The care component and mobility component should never be assessed as one, this is the reason I have never applied for the increase to high rate care, for fear of losing mobility component.

Please explain your views (both positive and negative) on personal independence payment.

Please explain your views (both positive and negative) on personal independence payment.
PIP has become a bad word for all those with needs who have applied and who will have to apply. The forms are not fit for purpose and do not cover individual situations or difficulties they are set for deliberate failure, are discriminatory. If these forms are not filled in by someone who knows the individual extremely well then they fail.

Please explain your views (both positive and negative) on attendance allowance.

Please explain your views (both positive and negative) on personal independence payment.
attendance allowance is an important benefit for all who have care needs, and gives them some control over their support.

Please explain your views (both positive and negative) on industrial injuries disablement benefit.

Please explain your views (both positive and negative) on personal independence payment.
I have no knowledge of this

Is there any particular change that could be made to these disability benefits that would significantly improve equality?

Please select one item
Ticked Yes
No
Please explain your answer.
DLA must remain in Scotland in the form with which it was introduced to enable people with disabilities to take part in society physically through work, education and social experiences. DLA allows for the extra expenses many with disabilities experience, gives them equality of movement and access throughout society. Both components of DLA should be assessed seperately not together as it can result in many losing one or other. Extra expenses such as wheelchair insurance & recovery, storage, footwear, assistance dogs etc. the care component helps greatly with extra costs

How should the new Scottish social security system operate in terms of a person applying for a disability related benefit?

Please explain your answer.
Assessments should be carried out by those qualified in service of NHS, not their GP but one in another surgery. Medical and specialist reports could also be used in this assessment.

How should the new Scottish social security system operate in terms of the eligibility criteria set for the benefit?

Please explain your answer.
This is complicated and the source of much that is wrong with the UK system in which many are seen as ineligible. Taking 100 people with Cerebral Palsy & not one has the same difficulties as the other (as an example). The only person eligible to describe their eligibility is each individual and those supporting them. This is a difficult dilemma Criteria of need? never

How should the new Scottish social security system operate in terms of the assessment / consideration of the application and the person’s disability and/or health condition?

Please explain your answer.
With the greatest compassion, respect and if possible knowledge of said condition. For those on lifetime benefits with lifetime conditions .... no assessments are required unless requested because of increased need in support. This would also save billions in costs. Continual assessments for those with permanent lifetime conditions are lining the pockets of private companies and councils who continually assess for SDS

How should the new Scottish social security system operate in terms the provision of entitlements and awards (at present cash payments and the option of the Motability Scheme)?

Please explain your answer.
The awards should always be in control of the user and what is best for their inclusion and independence in society. Everyone has a right to equality of life, movement and access to education, employment and social endeavors

How should the new Scottish social security system operate in terms of the review and appeal process where a person isn’t content with the outcome?

Please explain your answer.
There must be an easy access to appeals and the process used. Many times people require support with forms and application especially with appeals. The system has become so negative for users they are scared, fearful and just give up.

We want to make sure that the process is clear and accessible from start to finish, and that people claiming devolved benefits understand how and when their claim will be dealt with. With this in mind, do you think that timescales should be set for applications, assessments and decision-making?

Please select one item
Ticked Yes
No
Please explain your answer.
I am 33 years old and have been in fear every time a brown envelope appears, thankfully my mother fills in the forms successfully, I wouldn't be able to do this. The forms are so difficult for the majority of lifetimers as we have multiple difficulties. The application process is very difficult and needs to be simpler and accessible, language used must be clear, descriptives must be clear as they are not at the moment.

What evidence and information, if any, should be required to support an application for a Scottish benefit?

what evidence and information, if any, should be required to support an application for a Scottish benefit
This again depends on what application and if it is a first application. If first time application medical records and an integrated and efficient approach would be best, showing respect and understanding throughout the process.

Who should be responsible for requesting this information and who should be responsible for providing it?

Please explain why.
My GP knows little of my condition as I am healthy most of my exp was in hospitals and with specialists, some not here anymore. So information for me would be difficult, my hospital records have gone astray. I do have a support agency for daily support needs and social worker, and a physiotherapist. I can't speak for new applicants, only those of us already in the system ( yeh that's how it feels)

Should the individual be asked to give their consent (Note: consent must be freely given, specific and informed) to allow access to their personal information, including medical records, in the interests of simplifying and speeding up the application process and/or reducing the need for appeals due to lack of evidence?

Please select one item
Ticked Yes
No
If no, please explain why.
I cannot see why this would not be given. For what reason could this be refused?

If the individual has given their permission, should a Scottish social security agency be able to request information on their behalf?

Please select one item
Ticked Yes
No

Do you think that the impact of a person’s impairment or disability is the best way to determine entitlement to the benefits?

Please select one item
Ticked Yes
No
If yes, which aspects of an individual’s life should the criteria cover and why?
Impact of a disability determines a persons needs in all aspects of their life and every day for daily living. This is where the user should have most input as they are the only specialist with enough knowledge to do so. Needs differ between individuals and can be served in different ways suitable to individuals. The criteria should cover all aspects of their lives

Currently there are only special rules for the terminally ill but should there be others?

Currently there are only special rules for the terminally ill but should there be others?
yes

How could this be determined?

How could this be determined?
By the application. Many people with accidental injury can be left with lifetime disabilities. Their needs are immediate and create a devastating situation.

What do you think are the advantages and disadvantages of automatic entitlement?

What do you think are the advantages and disadvantages of automatic entitlement?
Advantages for this are immense especially when someone is affected from childhood. In these situations by the time they are of work age it would be an obvious decision for them to qualify for automatic entitlement. This would also save the government money with no assessments etc. Disadvantages of this are none, if done properly it is common sense.

Would applicants be content for their medical or other publicly-held records, for example prescribing and medicines information or information held by HMRC, to be accessed to support automatic entitlement where a legal basis existed to do this?

Would applicants be content for their medical or other publicly-held records, for example prescribing and medicines information or information held by HMRC, to be accessed to support automatic entitlement where a legal basis existed to do this
I cannot answer this except for myself, I would be content

Do you agree that the current UK-wide PIP and AA process for supporting people with terminal illnesses is responsive and appropriate?

Please select one item
Yes
Ticked No
If no, how could the approach could be improved? If no, how could the approach could be improved?
the UK wide process at this moment in time is barbaric end of

Should there be additional flexibility, for example, an up-front lump sum?

Please select one item
Ticked Yes
No
Please explain your reasons.
This may be a great idea for those who become Ill or Disabled out of the blue and have no immediate way of accessing equipment etc. eg Someone who has an accident or has been diagnosed with a life changing condition and is being discharged from hospital. They would need support, advice and financial assistance for equipment etc

In the longer term, do you think that the Scottish Government should explore the potential for a consistent approach to eligibility across all ages, with interventions to meet specific needs at certain life stages or situations?

Please select one item
Ticked Yes
No
Please explain why.
I feel this is a great idea and the consistency would be helpful for all. 'Whole of Life' approach is progressive and innovative

What would the advantages and disadvantages of a single, whole-of-life benefit be?

Please explain your answer.
As this is a new and progressive idea this is difficult to answer. I have been disabled from birth, my whole life. I cannot tell you what the word assessment means to me, as it sends shivers down my spine. I have been assessed since birth mostly by people who have no idea the impact my condition has, and all of my disabilities some of which are not visible. I have explained myself so many times, I shouldn't have to.

Could the current assessment processes for disability benefits be improved?

Please select one item
Ticked Yes
No
Please explain how.
It must be improved. The words you use are Compassion, Dignity and Respect, none of these words describe the assessment process for any UK benefit. If you use compassion, dignity and respect then it will work for the users, giving them dignity, security and independence.

For those people that may require a face-to-face assessment, who do you think should deliver the assessments and how? For example, private organisation, not-for-profit organisation, public sector body or professional from health or social care.

people that may require a face-to-face assessment, who do you think should deliver the assessments and how
Professionals from health service with input from social care

What are the advantages and disadvantages of different types of assessments e.g. paper based, face to face, telephone?

What are the advantages and disadvantages of different types of assessments e.g. paper based, face to face, telephone?
this depends on whether it is a first assessment or a continual assessment. Once a person has the benefit and their condition will never improve and may deteriorate no assessment should ever be required. As I said previously each applicant is different, as a lifetime recipient assessments would be like waiting on continual punishment, humiliation and degredation

How could the existing assessment process be improved?

How could the existing assessment process be improved?
immensely . The process was, many years ago, sufficient and it worked. Now the assessment process is criminal, degrading and persecutes the most vulnerable in society, many have died as a result. Any improvement would be good, vast improvement is necessary

Could technology support the assessment process to promote accessibility, communication and convenience?

Please select one item
Ticked Yes
No
Please explain why. If yes, please explain what technology would be helpful e.g. Skype, video conferencing.
erm this is difficult to answer as many are unable to use the above, this would depend very much on the users difficulties. My difficulties with communication is reading and writing, I use voice. This is the reason my mother is filling this in and not me, as I tried and could not quite understand it. It would have taken me days and days to read it, never mind respond. I suppose then I have answered it lol

If the individual’s condition or circumstances are unlikely to change, should they have to be re-assessed?

Please select one item
Yes
Ticked No
Please explain why.
Unless their condition has deteriorated they should never be re-assessed

What evidence do you think would be required to determine that a person's condition is not likely to change?

evidence do you think would be required to determine that a person's condition is not likely to change
Their life. Most disabled from birth on lifetime DLA have conditions which will never improve most are degenerative. DWP seemed to suggest miracles, well I never chose to have Cerebral Palsy, Spastic quadriplegia, CVI (partially blind). I have been taught that we cannot control what happens to us, we do have control on how we react to it. I do that every day, if it were up to DWP I would be punished for that as I have a voice and I use it

Who should provide that evidence?

Who should provide that evidence
The person or their representatives, if a person has a lifetime condition what evidence would be required?

Do you think people should be offered the choice of spending some of their benefit for alternative support, such as reduced energy tariffs or adaptations to their homes?

Please select one item
Yes
Ticked No
Please explain why.
If a person has the benefits they can use them for heating bills or adaptations, although those are done by the local authority
What alternative support do you think we should be considering?
Sorry I do not know what alternative support you speak of? I have support workers daily financed by direct payment(local authority) & ILF Scotland ( which I have just found out will take 1third off my benefit and cancel out my Severe Disability Premium ).<< my contribution??????? This may mean I have to lose my home and move back in with my mum

Would a one-off, lump sum payment be more appropriate than regular payments in some situations?

Please select one item
Yes
Ticked No
Please explain why. If yes, what are they?
Don't understand what a one off lump sum payment means. When you have a disability that means you are unable ever to have paid employment you will always need regular payments and support

What would be the advantages and disadvantages of such an approach?

What would be the advantages and disadvantages of such an approach?
I do not know, sorry

Should the new Scottish social security system continue to include the use of mobility allowance to lease cars, wheelchairs or scooters?

Please select one item
Ticked Yes
No
Please explain why.
This is a lifeline to many and works in all situations although at the moment the user chooses and that should remain their choice

How could the new Scottish social security system support older people with mobility problems not eligible for a mobility allowance?

new Scottish social security system support older people with mobility problems not eligible for a mobility allowance
Yes they should as many are housebound and cannot be mobile

How could the new Scottish social security system better support people of all ages with mobility problems who are in receipt of a mobility allowance?

How could the new Scottish social security system better support people of all ages with mobility problems who are in receipt of a mobility allowance?
Make sure it is not seen as scrounging or a free car. Mobility is something every person takes for granted until it is removed, mobility allowance changed my life. I have a car ( which I cannot drive) which has an open policy meaning my support workers & family drive me. Though there are many parents use this for their car, their child hardly sees the inside, this needs to stop

What kind of additional support should be available for people who need more help with their application and during assessment?

additional support should be available for people who need more help with their application and during assessment
The application process according to my mom used to be rather simple, if you needed help the person in Social Security office would assist you? Now? The whole system needs changed, attitudes need changed. Many are scared to apply for increases they are due, in case they lose what they have. Many attenpt to help with forms and the person is refused the benefit, not because they don't qualify but because the form is not filled in to suit the person

How could disability benefits work more effectively with other services at national and local level assuming that legislation allows for this e.g. with health and social care, professionals supporting families with a disabled child.

disability benefits work more effectively with other services at national and local level
This would depend very much on the user and what their specific needs are, they must be at the centre always.
How do you think this might be achieved?
with speaking to the individual concerned, their support services and any one involved. Planning meetings are a good way to do this
What are the risks?
'Representative groups, devolved services ....... risks are people will be put at risk by widening those involved with an at risk vulnerable person. If too many become involved it becomes more about the groups than the individual. This must be person centred and those that can control their service must be allowed to

If DLA and PIP help meet the additional costs of disability, what is the role of IIDB and its supplementary allowances (Constant Attendance Allowance, Reduced Earnings Allowance etc) in the benefits system?

Please explain your answers.
I have no exp or knowledge of this

What is right with the IIDB scheme?

What is right with the IIDB scheme?
N/A

What is wrong with the IIDB scheme?

What is wrong with the IIDB scheme?
N/A

Should different approaches be taken for people with life limiting conditions compared to people with less severe conditions?

Please select one item
Ticked Yes
No
What would be the advantages or disadvantages of such an approach?
Yes and No as I would have to ask what your explanation is of 'Life Limiting Condition' & 'less severe' I actually do not believe you can list people on severity, classing them is quite insulting. Plus what capacity would the approach be?

Are there situations where a one off lump sum payment would be more appropriate than a regular weekly IIDB benefit payment?

What are they, and why? What would be the advantages and disadvantages of such an approach?
N/A

Should the Scottish Government seek to work with the UK Government to reform the IIDB scheme?

If yes, what should be the priorities be? What barriers might there be to this approach?
N/A know nothing of this benefit

Do you agree with the Scottish Governments approach to Severe Disablement Allowance?

Please select one item
Ticked Yes
No
Please explain why.
All those on ESA and SDP,(like myself) should be on one benefit SDA. Those who will be on an income benefit for their lifetime should never be on Employment Support Allowance. This is a chance to change the full system

Carer's Allowance

Do you agree with the Scottish Governments approach to developing a Scottish carers benefit?

Please select one item
Ticked Yes
No
Please explain why.
This is long overdue. My mother received carers allowance which was then taken off her income support so she never benefited financially though her stamp was paid. She now receives Underlying Entitlement on her pension, so is receiving benefit now. Those with a permanent long term disability should have a disability benefit not ESA

Do you agree with our proposed short to medium term priorities for developing a Scottish carer's benefit?

Please select one item
Ticked Yes
No
Please explain why.
this can only benefit the carer and person being cared for

How can we improve the user experience for the carer (e.g. the application and assessment process for carer's benefit)?

How can we improve the user experience for the carer
with support throughout the process and support locally with respite

Should the Scottish Government offer the choice of exchanging some (or all) of a cash benefit for alternative support (e.g. reduced energy tariffs)?

Please select one item
Yes
Ticked No
Please explain why.
a person can put payment to energy tariffs, their choice

What alternative support should be considered?

What alternative support should be considered?
support for respite care & support staff to make sure the carer does not burn out

How can we achieve a better alignment between a future Scottish carer benefit and other devolved services?

How can we achieve a better alignment between a future Scottish carer benefit and other devolved services?
alignment with other benefits when devolved plus services within the area, most helpful support for carers is that they get respite

How can we improve the support given to young people with significant caring responsibilities - beyond what is currently available?

How can we improve the support given to young people with significant caring responsibilities - beyond what is currently available?
by introducing a payment for support hours to take the burden off the children and young person. All carers especially children need a break, the person they care for knows this.

Do you agree with our proposed long term plans for developing a Scottish Carer’s Benefit?

Please select one item
Ticked Yes
No
Please explain why
It is simply so desperately needed while it recognises that need it should also recognise the person needing the care

Do you have any other comments about the Scottish Governments proposals for a Scottish Carer’s Benefit?

any other comments about the Scottish Governments proposals for a Scottish carers benefit
just that it is long overdue

Winter Fuel and Cold Weather Payments

Do you have any comments about the Scottish Governments proposals for Winter Fuel and Cold Weather Payments?

other commments
No just that it continues

Could changes be made to the eligibility criteria for Cold Weather Payments?

For example, what temperature and length should Cold Weather Payments be made on in Scotland?
I can't comment on that

Funeral Payments

Which of these elements do you think should be included in a low cost/simple funeral and paid for by the funeral payment?

Professional funeral director fees – advice and administration etc.
Please select one item
Ticked Yes No
Removal or collection of the deceased
Please select one item
Ticked Yes No
Care and storage of the deceased before the funeral
Please select one item
Ticked Yes No
Coffin
Please select one item
Ticked Yes No
Hearse or transport of the deceased
Please select one item
Ticked Yes No
Limousines or other car(s) for the family
Please select one item
Ticked Yes No
Flowers
Please select one item
Yes Ticked No
Death notice in a paper/local advertising to announce details of funeral (time and location)Death notice in a paper/local advertising to announce details of funeral (time and location)
Please select one item
Yes Ticked No
Fees associated with the ceremony e.g. for the minister or other celebrant
Please select one item
Yes Ticked No
Order of service sheets
Please select one item
Yes Ticked No
Catering for wake/funeral reception
Please select one item
Yes Ticked No
Venue hire for a wake/funeral reception
Please select one item
Yes Ticked No
Memorial headstone or plaque
Please select one item
Yes Ticked No
Travel expenses to arrange or attend the funeral
Please select one item
Ticked Yes No

Are there other elements that you think should be included or explicitly excluded?

Please select one item
Ticked Yes
No
Please explain why.
I do believe the coffin should never be the cheapest and family should be allowed to contribute, were they can, to improve the funeral

How can we improve the process for identifying whether someone is responsible for the funeral and should receive the funeral payment?

How can we improve the process for identifying whether someone is responsible for the funeral and should receive the funeral payment?
The person who has most responsibility for the dead person should be the one considered responsible for funeral costs. This does not always mean the person DWP sees as responsible for payment is the right person. This is a very emotive subject and should be dealt with in a compassionate and dignified manner

In terms of the Scottish Funeral Payment, are there any qualifying benefits (e.g. Pension Credit) that you would add to or take away from the current qualifying benefit list?

Please select one item
Yes
Ticked No
Please explain your answer
most are included

Is the three month application window for a Funeral Payment sufficient time for claimants to apply?

Please select one item
Yes
Ticked No
If no, please explain your answer and suggest an alternative length of time in which a claim could be made.
there are circumstances in which that window would not be sufficient. Length of time should be as is except for exceptional circumstances where a body has to be transported long distances or is not released for any reason

What are your views on the options for speeding up and simplifying the payment?

iews on the options for speeding up the grant
that would be more compassionate and considerable of the situation

The other funds which are deducted from the DWP funeral payment are listed below. What sorts of funds do you think it is appropriate to deduct from a Scottish FP?

Funds in the deceased’s bank account
Please select one item
Ticked Yes No
Funeral plan/insurance policy
Please select one item
Ticked Yes No
Contributions from charities or employers
Please select one item
Yes Ticked No
Money from an occupational pension scheme
Please select one item
Ticked Yes No
Money from a burial club
Please select one item
Ticked Yes No
Are there any other funds that you think are appropriate to deduct?
No

Are there other funds that you think are appropriate to deduct?

Are there other funds that you think are appropriate to deduct?
No

Which services should promote awareness of the funeral payment to ensure that claimants know about it at the relevant time?

ervices should promote awareness of the funeral payment to ensure that claimants know about it at the relevant time
This should be available for pensioners, in doctor surgeries, funeral premises etc. I never knew of this benefit

Are there any other points that you would like to raise in connection with the new Scottish Funeral Payment?

any other points that you would like to raise in connection with the new funeral payment
Make sure people know it exists

Best Start Grant

What are your views on who should receive the Best Start Grant?

What are your views on who should receive the Best Start Grant?
I would agree with the assessment above all who now qualify and others who may be just below the qualifying criteria

Should we continue to use the same system to determine who is responsible for a child for the purposes of the BSG application?

Please select one item
Yes
Ticked No
Please explain why.
the person responsible for the child may differ from one stage to the other, shared residency etc

Do you agree that each of the three BSG payments should only be made once for each child?

Please select one item
Ticked Yes
No

Should we continue to use the same method as the SSMG to determine whether a child is the first child in a household?

Please select one item
Ticked Yes
No
Please explain why. If no, what alternative method should we use?
It is the best way to identify

Do you agree that we should retain the requirement to obtain advice from a medical professional before making a maternity payment?

Please select one item
Ticked Yes
No
Please explain your answer.
simple and surest way

Are there other points during the first five years of a child’s life when families face greater pressure than at the start of nursery (other than birth and the start of school)?

The BSG will pay low income families £250 to support them as their children begin early learning and childcare. We want to provide support when people need it, but the practicalities may be difficult as everyone’s situation is different and plans for nursery and childcare can change right up until the last minute. We would like to understand the pressures that families face, when they face them and how the payment can add most value, without becoming too complicated.
no

What are your views on defining ‘the start of nursery’ as the point of entitlement to a funded early learning and childcare place, for the purposes of making the second payment?

What are your views on defining ‘the start of nursery’ as the point of entitlement to a funded early learning and childcare place, for the purposes of making the second payment?
this should be when they start proper nursery and not playgroup etc

Are there any particular issues related to the school payment that you think we should consider?

Are there any particular issues related to the nursery payment that you think we should consider?
once they have the payment, no

Are there any particular issues related to the school payment that you think we should consider?

Are there any particular issues related to the school payment that you think we should consider?
no

Should the school payment be payable to all eligible children who begin primary school for the first time in Scotland, or should an upper age limit be included?

Please select one item
Payable to all eligible children who begin primary school for the first time in Scotland
Ticked An upper age limit be included
school payment be payable to all eligible children who begin primary school for the first time in Scotland, or should an upper age limit be included
this is the only way or the system will be abused

What are your views on our proposals in relation to the BSG application process?

views on the proposals in relation to the application process
I believe the increase is sufficient and will help greatly

What are your views on establishing an integrated application process for the BSG and Healthy Start?

What are your views on establishing an integrated application process for the BSG and Healthy Start?
very good idea

What are the advantages and disadvantages of this approach?

What are the advantages and disadvantages of this approach?
I have no experience I can see the advantages as it makes things simpler. Disadvantages I have no idea

Would the option to receive items rather than a cash payment as part of the BSG have benefits?

Please select one item
Ticked Yes
No
Please explain why.
Choice I always believe individuals should be given choice. As a disabled person with support workers, I know if I ever had a child I would require extra support mainly at the beginning (not always). This would cost so having a choice on this would be a great help to many people

Which services should promote awareness of the BSG to ensure that claimants know about it at the relevant time?

We know that there is a patchy awareness of the SSMG and that take up is low. It is important that people are able to access and receive the support that they are entitled to. We think that we can improve take up of the BSG by ensuring that it is promoted by services commonly used by people who will need support, for example the family nurse partnership and health visitors. We also think that the new baby box which will be available for all new mothers will be a good opportunity to raise awareness of the BSG.
BSG should be promoted in Doctors surgeries, Clinics by health visitors district nurses & anti-natal classes

Discretionary Housing Payment

Could the way that DHPs are currently used be improved?

Please select one item
Yes
Ticked No
Please explain why.
\they work very well as they are. They should be flexible in the case of more changes in the future by WM

Could the administration of DHP applications be improved?

Please select one item
Ticked Yes
No
Please explain why.
Yes they must be. Local authorities are not very helpful in giving info on this and do not have the forms that would allow a necessary room allowance under spare room subsidy. As a result of this I have DHP and should not need this as I have a therapy room to do my daily physio.

Does the guidance for local authorities on DHPs need amending?

Please select one item
Ticked Yes
No
Please explain why.
I gave up requesting the forms I needed for a necessary room, and ended up in rent arrears so just accepted the DHP instead. Local authorities need more guidance to help and assist those who either need DHP or exemption form. They do not have the exemption form necessary

Job Grant

What should the Scottish Government consider in developing the Job Grant?

What should the Scottish Government consider in developing the Job Grant?
mainly a persons circumstances and proof they have a real position

Universal Credit flexibilities

Should the choice of managed payments of rent be extended to private sector landlords in the future?

Please select one item
Ticked Yes
No
Please explain why.
In many circumstances a person could get into rent arrears this takes that away and should always be a consideration for security of housing

Should payments of Universal Credit be split between members of a household?

Please select one item
Ticked Yes
No
Please explain why.
I don't believe one person should be utterly dependent on money from another it usually means that person loses out

If Yes, please indicate if you think the default position should be:

Please select one item
automatic payments to individuals, with the option to choose a joint payment
Ticked automatic household payments, with the option to choose individual payments

If Yes, how do you think payments should be split? For example 50/50 between members of a couple or weighted towards the person who is the main carer if the claim includes dependent children?

If Yes, how do you think payments should be split? For example 50/50 between members of a couple or weighted towards the person who is the main carer if the claim includes dependent children?
weighted towards main carer if children involved, 50/50 if no children

Do you have any other comments about how the Scottish Government’s powers over Universal Credit administrative flexibilities will be delivered?

other comments about how the Scottish Government’s powers over Universal Credit administrative flexibilities will be delivered
UC is relatively new I have no exp of it, so my response is limited

Universal Credit housing element

Do you have any comments about the Scottish Government's powers over the housing element of Universal Credit?

Do you have any comments about the Scottish Government's powers over the housing element of Universal Credit?
I believe and trust you have looked into what is best for recipients

Advice, representation and advocacy

What role[s] should publicly funded advice providers to play in the development of a new Scottish social security system?

What role[s] should publicly funded advice providers to play in the development of a new Scottish social security system?
They have a huge role to play in providing the right information and advice to a claimant. This service should be easily accessible and compassionate to individuals needing it.

What steps need to be taken, to understand the likely impact of the transfer of the devolved benefits on publicly funded advice in Scotland?

What steps need to be taken, to understand the likely impact of the transfer of the devolved benefits on publicly funded advice in Scotland?
Training must be provided to make sure they are knowledgeable as their advice & assistance could make such a difference

How could the transfer of the devolved benefits to Scotland be used to drive improvements in the provision of publicly funded advice?

How could the transfer of the devolved benefits to Scotland be used to drive improvements in the provision of publicly funded advice?
The fact the service exists will be a great benefit as at this moment most are put off. Improvement should happen automatically if people are treated with respect and dignity

Do you think that Independent Advocacy services should be available to help people successfully claim appropriate benefits?

Please select one item
Ticked Yes
No
Please explain why.
Yes and they are necessary for those who have great difficulty with assessments and forms. They must be fully trained and get to know the individual well before filling forms as this is crucial. Many lose benefits because someone filled in their forms incorrectly

What next steps would you recommend that would help the Scottish Government better understand the likely impact of the transfer of the devolved benefits on independent advocacy services?

What next steps would you recommend that would help the Scottish Government better understand the likely impact of the transfer of the devolved benefits on independent advocacy services?
Participation and consultation with advocacy groups and those individuals who would require their assistance

Complaints, reviews and appeals

Do you agree that we should base our CHP on the Scottish Public Services Ombudsman’s ‘Statement of Complaints Handling Principles’?

Please select one item
Ticked Yes
No
Do you agree that we should base our CHP on the Scottish Public Services Ombudsman’s ‘Statement of Complaints Handling Principles’
the principles and processes seem very good

How should a Scottish internal review process work?

How should a Scottish internal review process work?
Internal reviews usually mean nothing to those complaining as it is the very agency you are complaining of that deals with this. Unfortunately the majority of individuals claiming benefits need assistance and complaining is scary and most give up. So internal reviews process should be very selective as to who deals with it and should be a simple accessible system

What would be a reasonable timescale for the review to be carried out?

What would be a reasonable timescale for the review to be carried out?
within 1 month

Should a tribunal be used as the forum for dispute resolution for the Scottish social security system?

Please select one item
Yes
Ticked No
Please explain why.
not the existing one

If no, are there any alternative methods of dispute resolution that you think would be preferable to a tribunal?

If no, are there any alternative methods of dispute resolution that you think would be preferable to a tribunal?
If Scotland is going to have a social security agency surely there will be a chance to begin a different way to deal with disputes

How can we ensure that our values underpin the appeals process for a Scottish Social Security agency?

How can we ensure that our values underpin the appeals process for a Scottish Social Security agency?
We must ensure exactly this, our values and of integrity, compassion, respect and dignity must be carried forward into the appeals process. Advocacy must play a part in this for those who need it

Are there any other values that you feel should be reflected in the design of the appeals process?

Are there any other values that you feel should be reflected in the design of the appeals process?
Fairness and understanding difficult situations and problems that can occur for claimants in these circumstances. it must also be taken into account the reserved benefits are applied under horrific rules and impossible criteria which will affect claimants terribly

What do you consider would be reasonable timescales to hear an appeal in relation a decision on a devolved benefit?

What do you consider would be reasonable timescales to hear an appeal in relation a decision on a devolved benefit
6 weeks or sooner

In order to ensure a transparent appeals process, what steps could be taken to ensure that those appealing fully understand and are kept informed at each stage of the appeals process?

In order to ensure a transparent appeals process, what steps could be taken to ensure that those appealing fully understand and are kept informed at each stage of the appeals process?
they must be provided with all relevant information in whatever format they require throughout the process.

How could the existing appeals process be improved?

How could the existing appeals process be improved?
as it is based on reserved benefits it is unsuitable as they have changed all considerations for most benefits. I find that it cannot in the form it stands today be improved. So any improvement I suppose is better than none

Residency and cross-border issues

Should Scottish benefits should only be payable to individuals who are resident in Scotland?

Please select one item
Ticked Yes
No
Please explain why
could never work otherwise there would be too many complications

What are your views on the ‘habitual’ residence test currently used in the UK by DWP?

views on the habitual residence test currently used in the UK by DWP
i feel this would have to be the same as it seems to take into account movement and residency

Are there other issues that the Scottish Government should take into account when it comes to residency rules?

other issues that the Scottish Government take into account when it comes to Residency rules
probably but the complex and different realities will cause problems

What other factors should Scottish Government consider in seeking to coordinate its social security system with other social security systems in the UK?

What other factors should Scottish Government consider in seeking to coordinate its social security system with other social security systems in the UK?
working together with all other bodies throughout the UK seems complex but must be done, avoiding a post code lottery- as is in place for social care in Scotland alone

How can the Scottish Government ensure that no-one either falls through the cracks or is able to make a 'double-claim'?

How can the Scottish Government ensure that no-one either falls through the cracks or is able to make a 'double-claim'
Abuse of the system will happen though as it is new and the system is not in place every aspect must be considered before it is applied

Managing overpayments and debt

Could the existing arrangements for recovering social security overpayments be improved in the new Scottish social security system?

Please select one item
Ticked Yes
No
If yes, please explain your answer.
All existing arrangements can be improved and i am sure you will look at every avenue in which this could be accomplished

What are your views on the role that financial advice can play in the recovery of overpayments?

views on the role that financial advice can play in the recovery of overpayments
that would be very welcome helpful if an individual is financially having problems that threaten their welfare and security

Fraud

Should the existing Scottish Government approach to fraud be adopted for use in our social security system?

Please select one item
Ticked Yes
No

If yes, should our existing counter-fraud strategy be adapted in any way?

Please select one item
Ticked Yes
No
Please explain your answer.
Yes as this is a different type of fraud as to why they exist, it should be adapted to suit the system that will be in play

How could the new Scottish social security system ‘design out’ errors and reduce the potential for fraud at the application stage?

How could the new Scottish social security system ‘design out’ errors and reduce the potential for fraud at the application stage?
correct and vigilant staffing for the agency would help with reducing the potential for fraud

Should the Scottish social security system adopt DWP’s existing code of practice for investigators?

Please select one item
Yes
Ticked No
Please explain your answer.
No I can't imagine the Scottish system using anything that DWP uses as they see claimants in a very derrogative manner

What are your views on the existing range of powers granted to investigators?

What are your views on the existing range of powers granted to investigators?
Too much

What are your views on conducting interviews under caution?

What are your views on conducting interviews under caution?
I don't have any, as I feel this is something I have no experience of and would wish I never have

What improvements could be made around conducting interviews under caution?

What improvements could be made around conducting interviews under caution?
recording must be in place both audio and visual

Should the Scottish Government retain the same list of offences which people can be found guilty of in terms of social security fraud?

Please select one item
Ticked Yes
No
Please explain your answer.
It seems fair and appropriate

Should the Scottish Government impose the same level of penalties for social security fraud as are currently imposed?

Please select one item
Ticked Yes
No
Please explain your answer.
I feel this is a matter for elected representatives (most of this section is)

Safeguarding your information

Should the existing Scottish Government approach to Identity Management and Privacy Principles be adopted for use in our social security system?

Please select one item
Ticked Yes
No
Please explain your answer.
These principles are explained fully and should be adopted

If yes, should our existing Identity Management and Privacy Principles be adapted in any way?

Please select one item
Yes
Ticked No
Please explain how.
I can't see any reason why

Who do you consider should be consulted in regard to the Privacy Impact Assessment and what form should this take?

Who do you consider should be consulted in regard to the Privacy Impact Assessment and what form should this take
legal bodies? I really don't know

What are your views on privacy issues that may affect the new agency?

What are your views on privacy issues that may affect the new Agency?
I feel all employed in the agency must realise the importance of privacy issues for users and their families

Do you perceive any risks to the individual? What solutions might be considered to mitigate against these?

What solutions might be considered to mitigate against these?
There are always risks especially when dealing with the most vulnerable of individuals. Good training, understanding and respect will be necessary

Would you support strictly controlled sharing of information between public sector bodies and the agency, where legislation allowed, to make the application process easier for claimants? For example, this information could be used to prepopulate application forms or to support applications, reducing the burden on applicants.

Please select one item
Ticked Yes
No
Please explain your answer.
Yes though privacy would be at risk, it would have to be with signed permission

Would you support strictly controlled sharing of information between a Scottish social security agency and other public sector organisations (for example local authorities) to support service improvements and deliver value for money?

Please select one item
Ticked Yes
No
Please explain your answer.
self evident it is done today

What are your views on having the option to complete social security application forms online? Can you foresee any disadvantages?

What are your views on having the option to complete social security application forms online? Can you foresee any disadvantages?
I would imagine that would increase the proportion of fraud quite a lot as the person could be applying to several agencies under different names and addresses with no way of identifying that person. It would also increase the prospect of abuse to family members and the vulnerable

What are your views on the new agency providing a secure email account or other electronic access to check and correct information for the purposes of assessing applications (noting that any such provision would need to be audited and regulated so that the security and accuracy of the information would not be compromised)?

What are your views on the new agency providing a secure email account or other electronic access to check and correct information for the purposes of assessing applications
I don't know enough about this aspect

Uprating

What are your views on the best way to ensure that devolved benefits keep pace with the cost of living?

What are your views on the best way to ensure that devolved benefits keep pace with the cost of living
having read this section I would say inflation guided though I understand the aspects that have been highlighted. I am sure the Scottish Gov will do what is best for all

Are there any devolved benefits in particular where uprating based on a measure of inflation would not be effective? If so, please explain which benefits and why.

devolved benefits in particular where uprating based on a measure of inflation would not be effective? If so, please explain which benefits and why
mainly DLA as it's a different kind of benefit and not seen as a weekly income more as support

Partial Equality Impact Assessment (EQIA)

How can the Scottish Government improve its partial EqIA so as to produce a full EqIA to support the bill?

How can the Scottish Government improve its partial EqIA so as to produce a full EqIA to support the bill?
Speaking as a disabled person who receives benefits,ensure all barriers are considered and removed if possible, Equality cannot exist when everyday life for many consists of barriers which stand in the way of a normal life. Most accept the physical barriers to disabled people which although have been dealt with in the main, still exist. There are many others which affect those of us with learning difficulties, visual impairment, hearing difficulties, transport, language and financial barriers.